5

Being Obviously Wrong About Autism

I’m watching a Louis Theroux documentary about Autism (here’s the link to the BBC web site [1]). The main thing that strikes me so far (after watching 7.5 minutes of it) is the bad design of the DLC-Warren school for Autistic kids in New Jersey [2].

A significant portion of people on the Autism Spectrum have problems with noisy environments, whether most Autistic people have problems with noise depends on what degree of discomfort is considered a problem. But I think it’s reasonable to assume that the majority of kids on the Autism Spectrum will behave better in a quiet environment. So any environment that is noisy will cause more difficult behavior in most Autistic kids and the kids who don’t have problems with the noise will have problems with the way the other kids act. Any environment that is more prone to noise pollution than is strictly necessary is hostile to most people on the Autism Spectrum and all groups of Autistic people.

The school that is featured in the start of the documentary is obviously wrong in this regard. For starters I haven’t seen any carpet anywhere. Carpeted floors are slightly more expensive than lino but the cost isn’t significant in terms of the cost of running a special school (such schools are expensive by private-school standards). But carpet makes a significant difference to ambient noise.

Most of the footage from that school included obvious echos even though they had an opportunity to film when there was the least disruption – presumably noise pollution would be a lot worse when a class finished.

It’s not difficult to install carpet in all indoor areas in a school. It’s also not difficult to install rubber floors in all outdoor areas in a school (it seems that most schools are doing this already in play areas for safety reasons). For a small amount of money spent on installing and maintaining noise absorbing floor surfaces the school could achieve better educational results. The next step would be to install noise absorbing ceiling tiles and wallpaper, that might be a little more expensive to install but it would be cheap to maintain.

I think that the hallways in a school for Autistic kids should be as quiet as the lobby of a 5 star hotel. I don’t believe that there is any technical difficulty in achieving that goal, making a school look as good as an expensive hotel would be expensive but giving it the same acoustic properties wouldn’t be difficult or expensive.

How do people even manage to be so wrong about such things? Do they never seek any advice from any adult on the Autism Spectrum about how to run their school? Do they avoid doing any of the most basic Google searches for how to create a good environment for Autistic people? Do they just not care at all and create an environment that looks good to NTs? If they are just trying to impress NTs then why don’t they have enough pride to care that people like me will know how bad they are? These aren’t just rhetorical questions, I’d like to know what’s wrong with those people that makes them do their jobs in such an amazingly bad way.

Autism and the Treatment of Women Again

Background

I’ve previously written about the claim that people use Autism as an excuse for bad behavior [1]. In summary it doesn’t and such claims instead lead to people not being assessed for Autism.

I’ve also previously written about empathy and Autism in the context of discussions about conference sexual harassment [2]. The main point is that anyone who’s going to blame “empathy disorders” for the widespread mistreatment of women in society and divert the subject from the actions of average men to men in minority groups isn’t demonstrating empathy.

Discussions of the actions of average men are so often derailed to cover Autism that the Geek Feminism Wiki has a page about the issue of blaming Autism [3].

The Latest Issue

Last year Shanley Kane wrote an informative article for Medium titled “What Can Men Do” about the treatment of women in the IT industry [4]. It’s a good article, I recommend reading it. As an aside @shanley’s twitter feed is worth reading [5].

In response to Shanley’s article Jeff Atwood wrote an article of the same title this year which covered lots of other things [6]. He writes about Autism but doesn’t seem to realise that officially Asperger Syndrome is now Autism according to DSM-V (they decided that separate diagnosis of Autism, Asperger Syndrome, and PDD-NOS were too difficult and merged them). Asperger Syndrome is now a term that refers to historic issues (IE research that was published before DSM-V) and slang use.

Gender and the Autism Spectrum

Jeff claims that “autism skews heavily towards males at a 4:1 ratio” and cites the Epidemiology of Autism Wikipedia page as a reference. Firstly that page isn’t a great reference, I fixed one major error (which was obviously wrong to anyone who knows anything about Autism and also contradicted the cited reference) in the first section while writing this post.

The Wikipedia page cites a PDF about the Epidemiology of Autism that claims the 4.3:1 ratio of boys to girls [7]. However that PDF is a summary of other articles and the one which originated the 4.3:1 claim is behind a paywall. One thing that is worth noting in the PDF is that the section containing the 4.3:1 claim also references claims about correlations between race and Autism and studies contradicting such claims – it notes the possibility of “ascertainment bias”. I think that anyone who reads that section should immediately consider the possibility of ascertainment bias in regard to the gender ratio.

Most people who are diagnosed with Autism are diagnosed as children. An Autism diagnosis of a child is quite subjective, an important part is an IQ test (where the psychologist interprets the intent of the child in the many cases where answers aren’t clear) to compare social skills with IQ. So whether a child is diagnosed is determined by the psychologist’s impression of the child’s IQ vs the impression of their social skills.

Whether a child is even taken for assessment depends on whether they act in a way that’s considered to be obviously different. Any child who is suspected of being on the Autism Spectrum will be compared other children who have been diagnosed (IE mostly boys) and this will probably increase the probability that a boy will be assessed. So an Aspie girl might not be assessed because she acts like other Aspie girls not like the Aspie boys her parents and teachers have seen.

The way kids act is not solely determined by neuro-type. Our society expects and encourages boys to be louder than girls and take longer and more frequent turns to speak, this is so widespread that I don’t think it’s possible for parents to avoid it if their kids are exposed to the outside world. Because of this boys who would be diagnosed with Asperger Syndrome by DSM-IV tend to act in ways that are obviously different from other kids. While the combination of Autism and the the social expectations on girls tends to result in girls who are quiet, shy, and apologetic. The fact that girls are less obviously different and that their differences cause fewer difficulties for parents and teachers makes them less likely to be assessed. Note that the differences in behavior of boys and girls who have been diagnosed is noted by the professionals (and was discussed at a conference on AsperGirls that my wife attended) while the idea that this affects assessment rates is my theory.

Jeff also cites the book “The Essential Difference: Male And Female Brains And The Truth About Autism” by Professor Simon Baron-Cohen (who’s (in)famous for his “Extreme Male Brain” theory). The first thing to note about the “Extreme Male Brain” theory are that it depends almost entirely on the 4.3:1 ratio of males to females on the Autism Spectrum (which is dubious as I noted above). The only other evidence in support of it is subjective studies of children which suffer from the same cultural issues – this is why “double blind” tests should be used whenever possible. The book Delusions of Gender by Cordelia Fine [8] debunks Simon Baron-Cohen’s work among other things. The “look inside” feature of the Amazon page for Delusions of Gender allows you to read about Simon Baron-Cohen’s work [9].

Now even if the “Extreme Male Brain” theory had any merit it would be a really bad idea to cite it (or a book based on it) if you want to make things better for women in the IT industry. Cordelia’s book debunks the science and also shows how such claims about supposed essential difference are taken as exclusionary.

The Problem with Jeff Atwood

Jeff suggests in his post that men should listen to women. Then he and his followers have a huge flame-war with many women over twitter during which which he tweeted “Trying to diversify my follows by following any female voices that engaged me in a civil, constructive way recently“. If you only listen to women who agree with you then that doesn’t really count as listening to women. When you have a stated policy of only listening to women who agree then it seems to be more about limiting what women may feel free to say around you. The Geek Feminism wiki page about the “Tone Argument [10] says the following:

One way in which the tone argument frequently manifests itself is as a call for civility. A way to gauge whether a request for civility is sincere or not is to ask whether the person asking for civility has more power along whatever axes are contextually relevant (see Intersectionality) than the person being called “incivil”, less power, or equal power. Often, people who have the privilege of being listened to and taken seriously level accusations of “incivility” as a silencing tactic, and label as “incivil” any speech or behavior that questions their privilege. For example, some men label any feminist thought or speech as hostile or impolite; there is no way for anybody to question male power or privilege without being called rude or aggressive. Likewise, some white people label any critical discussion of race, particularly when initiated by people of color, as incivil.

Writing about one topic is also a really good idea. A blog post titled “What Can Men Do” should be about things that men can do. Not about Autism, speculation about supposed inherent differences between men and women which are based on bad research, gender diversity in various occupations, etc. Following up a post on “What Can Men Do” with discussion (in blog comments and twitter) about what women should do before they are allowed to join the conversation is ridiculous. Jeff’s blog post says that men should listen to women, excluding women based on the tone argument is gross hypocrisy.

Swearing

Jeff makes a big deal of the fact that Shanley uses some profane language in her tweets. This combines a couple of different ways of silencing women. It’s quite common for women to be held to a high standard of “ladylike” behavior, while men get a free pass on doing the same thing. One example of this is the Geek Feminism article about the results of Sarah Sharp’s request for civility in the Linux kernel community [11]. That’s not an isolated incident, to the best of my recollection in 20+ years my local Linux Users Group has had only one debate about profanity on mailing lists – in that case a woman (who is no longer active in the group) was criticised for using lesser profanity than men used both before and after with no comment (as an experiment I used some gratuitous profanity a couple of weeks later and no-one commented).

There is also a common difference in interpretation of expressions of emotion, when a woman seems angry then she invariably has men tell her to change her approach (even when there are obvious reasons for her anger) while when a man is angry the possibility that other people shouldn’t make him angry will usually be considered.

The issues related to the treatment of women have had a large affect on Shanley’s life and her friend’s lives. It’s quite understandable that she is angry about this. Her use of profanity in tweets seems appropriate to the situation.

Other Links

Newsweek’s “Gentlemen” in Technology article has a section about Jeff [12], it’s interesting to note his history of deleting tweets and editing his post. I presume he will change his post in response to mine and not make any note of the differences.

Jacob Kaplan-Moss wrote a good rebuttal to Jeff’s post [13]. It’s a good article and has some other relevant links that are worth reading.

9

The Aspie Accent

I am often asked about my “accent”. The most common guess is that it’s a “British” accent, while I lived in London for about a year I don’t think that my accent changed much during that time (people have commented on the way I speak since I was in primary school). Also there isn’t a “British accent” anyway, the Wikipedia page of Regional Accents of English has the first three sections devoted to accents in the island of Britain (and Northern Ireland is part of the United Kingdom which people often mean when they sat “Britain”). The Received Pronounciation is the main BBC accent and the accent that is most associated with Britain/England/the UK (which are three different things even though most people don’t know it) and I don’t think that I sound like that at all.

I’ve had various other guesses, the Netherlands (where I lived for a few years but mostly spoke to other foreigners), New Zealand (which I’ve visited a couple of times for conferences), Denmark (the closest I got was attending a conference in Sweden), and probably others I can’t remember.

If I actually had developed an accent from another country then it would probably be from the US. The amount of time I’ve spent watching Hollywood movies and watching US TV shows greatly exceeds the amount of time I’ve spent listening to people from all other countries. The fact that among all the people who wanted to try and guess where my accent supposedly originated none have ever included the US seems like strong evidence to suggest that I don’t have any sort of accent that really derives from another country. Also I have never had someone mistake me for being a resident of their own country based on accent which seems like clear evidence that all claims about me having a foreign accent are bogus.

Autism forums such as WrongPlanet.net [1] always turn up plenty of results for a search on “accent”. In such discussions it seems that a “British accent” is most common mistake and there are often theories raised about why that is – often related to speaking in a formal or precise way or by using a large vocabulary. Also in such discussions the list of countries that people supposedly have accents from is very inclusive, it seems that any country that the listener has heard of but doesn’t know that well is a good candidate. The fact that Aspies from outside the US are rarely regarded as having an American accent could be due to the fact that Hollywood has made most of the world population aware of what most American accents sound like.

Also if I really had some sort of accent from another country then probably someone would comment on that when I’m outside Australia. When I’m travelling people tend to recognise my accent as Australian, while it doesn’t please me when someone thinks that I sound like Crocodile Dundee (as happened in the Netherlands) it might not be entirely inaccurate.

This is Annoying

The way the issue of accent is raised is generally in the form of people asking where I’m from, it seems to imply that they don’t think I belong in Australia because of the way I speak. It’s particularly annoying when people seem unable to realise that they are being obnoxious after the first wrong guess. When I reply “no” to the first “are you from $COUNTRY” question and don’t offer any further commentary it’s not an invitation to play 20 questions regarding where I’m supposedly from, it’s actually an indication that I’m not interested in a conversation on that topic. A Social Skills 101 course would include teaching people that when someone uses one-word answers to your questions it usually means that they either don’t like your questions or don’t want to talk to you.

Social Skills vs Status

The combination of persistence and misreading a social situation which are involved when someone interrogates me about my supposed accent are both parts of the diagnostic criteria for Autism. But I generally don’t get questions about my “accent” in situations where there are many Aspies (IE anything related to the Free Software community). I think that this is because my interactions with people in the Free Software community are based around work (with HR rules against being a jerk) and community events where no-one would doubt that I belong.

I mostly get questions about my “accent” from random middle-class white people who feel entitled to query other people about their status who I meet in situations where there is nothing restraining them from being a jerk. For example random people I meet on public transport.

1

Depression

Andrew Solomon gave an interesting TED talk about depression [1].

I’ve had problems with depression at various times through my life, about 18 months ago I recognised it as depression after reading a list of depression symptoms on the Beyond Blue site. I think that they have changed their site recently they now have an interactive checklist for depression on their web site [2] (or maybe I just missed the interactive part last time).

There is a strong correlation between Autism and depression, this is noted both in research and described on the web, Elspeth’s article on Bluehackers is a good description of this [3]. Her experiences differ from mine in some ways, but it’s within the common range of experiences you see described on Autism forums etc.

Depression is getting more widely known, organisations such as Beyond Blue and Bluehackers are doing good work in spreading information to people who might be depressed and people who know them. The general advice is to see a psychologist, which is good advice for average people.

Alexithymia and Choice of Psychologists

One problem with such advice is that it doesn’t apply so well to people with alexithymia (read the Wikipedia page) [4], that means most people on the Autism Spectrum. The Wikipedia page says “psychosomatic illness or substance abuse is frequently exacerbated should these individuals enter psychotherapy”. Based on people I know and accounts I’ve read on the Internet I expect that anyone on the Autism Spectrum who sees a psychologist that doesn’t specialise in Autism (which means most psychologists) will get a result that’s about the opposite of what one might desire. In theory a psychologist could recognise someone as being possibly on the Autism Spectrum and refer them to an expert for assessment, but I haven’t heard of that happening to an adult.

I think that most people who have some degree of alexithymia will avoid psychologists, without ever seeing one you can just know that it’s going to be unpleasant. So while you wouldn’t want someone who has alexithymia to visit a random psychologist in practice that shouldn’t happen too often as such people will be more likely to reject any advice about seeing a psychologist.

My page of Autism self-diagnosis tests has a link to an Alexithymia test [5]. If you get a high score on that test (or if taking the test seems too unpleasant) then it’s best to see a psychologist who specialises in Autism. Such psychologists are usually happy to work for people who don’t quite meet the Autism diagnostic criteria, but they may strongly recommend an Autism assessment so that they can determine the best strategies for treatment.

In terms of addressing such problems it seems that the best thing we can do is try and reduce the stigma associated with Autism. The vast majority of people on the Autism Spectrum have little in common with Rain Man. Many of the so-called Autism advocacy organisations make things worse by implying that everyone who is Autistic is unable to live an independent life which helps them in fundraising but doesn’t help us.

2

Dr Suelette Dreyfus LCA Keynote

Dr Suelette Dreyfus gave an interesting LCA keynote speech on Monday (it’s online now for people who aren’t attending LCA [1]). One of the interesting points she made was regarding the greater support for privacy protection in Germany, this is apparently due to so many German citizens having read their own Stasi files.

The section of her talk about the technology that is being used against us today was very concerning. I wonder whether we should plan to move away from using any hardware or closed source software from the US, China, and probably most countries other than Germany.

We really need to consider these issues at election time. I have previously blogged some rough ideas about having organisations such as Linux Australia poll parties to determine how well they represent the interests of citizens who use Linux [2]. I think that such things are even more important now. Steven Levy wrote an interesting summary of the situation for Wired [3].

At the end of her talk Suelette suggested that Aspies might be more likely to be whistle-blowers due to being unable to recognise the social signals about such things (IE managers say that they won’t punish people for speaking out but most people recognise that to be lies). It’s a plausible theory but I’m worried that managers might decide to avoid hiring Aspies because of this. I wonder how many managers plan to have illegal activity as an option. But I guess that having criminals refuse to hire me wouldn’t be such a bad thing.

Asperger Syndrome – Disability vs “Over Pathologising”

Is Asperger Syndrome a Disability?

Some people tell me that I’m disabled. Usually it’s an unstated implication such as referring to Asperger Syndrome as a disability with the assumption that I’ll agree. One time I had someone assume that I had never had a paid job because they knew I’m an Aspie, maybe I should boast more about my career successes.

One interesting take on this is represented by Maco’s bost about Disablism/Ablism where she says “Vocab note: A person has an impairment. Society’s treatment of that impairment is what disables the person” [1]. The same concept is presented by BRAINHE in their Social Model of Disability document [2].

The Wikipedia page on Ableism says “The ableist worldview holds that disability is an error, a mistake, or a failing, rather than a simple consequence of human diversity, akin to race, ethnicity, sexual orientation or gender” [3]. This is fairly close to the position that Neurodiversity [4] advocates take on Autism.

Jaarsma P and Welin S wrote an interesting paper titled “Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement” [5] which considers these issues in depth and comes to the conclusion that High Functioning Autism (for which Asperger Syndrome is generally regarded as a synonym) is a difference while Low Functioning Autism is a disability.

I think that generally we should accept the opinion of the person in question. Someone who is unable to communicate or is too young to make an informed decision could have their disability status determined by carers. But anyone who is capable of making an informed decision and communicating it should have their opinion respected. I am not going to argue with any of the people who claim that they are disabled due to an Autism Spectrum Disorder. But I don’t think that I am disabled and I think that people shouldn’t argue with me about this.

Over Pathologising

Lynne Soraya wrote an interesting article for Psychology Today about one aspect of the supposed over-diagnosis [6]. She responds to Paul Steinberg, a psychiatrist who made a number of claims about Asperger Syndrome which lack evidence. Paul’s main idea seems to be that anyone who has social problems but who seems to be successful regardless shouldn’t have an Autism Spectrum diagnosis and he claims that such people should be regarded as having a “social disability” instead. His main idea seems to be that having a diagnosis is a bad thing, but his idea of having a “social disability” diagnosis instead doesn’t seem so great.

In many other discussions I’ve seen people claim that a large number of diagnosis of anything is a problem. Their idea seems to be that the vast majority of the population shouldn’t have a diagnosis for anything and that whenever a significant number of people are diagnosed with a psychological condition (and 1% of the population seems to be a significant number) then it’s a problem. I don’t think that having a large portion of the population diagnosed is necessarily a problem, I think that it would be OK if the majority of the population was diagnosed with something. The issue is not whether people are diagnosed but what happens after the diagnosis.

When a child is diagnosed their parents can help them deal with whatever the issues are – this may or may not require further involvement with psychologists or special schools. For the milder cases (of Autism, ADHD, and other conditions) merely knowing what areas will cause difficulty and teaching kids how to deal with them will be enough to solve many problems. When someone is diagnosed as a child but doesn’t have obvious symptoms as an adult that is more likely to be an indication that they were taught good coping mechanisms and protected from bad situations as a child – not that the diagnosis was wrong. There are some serious issues with special schools and psychiatric drugs, but diagnosis doesn’t necessarily imply mistreatment and avoiding a diagnosis is not the correct way to avoid such mistreatment.

When someone is diagnosed as an adult they have to learn to deal with it. The general lack of psychologists (waiting times as long as 6 months are common) and the fact that most psychologists won’t do any good for someone on the Autism Spectrum is a real problem. But merely knowing the source of your problems is a major step towards alleviating or solving them.

One of the arguments that is commonly used against so-called over-diagnosis is that adults don’t show apparent symptoms. The issue here is that with some effort and planning adults on the spectrum can act like NTs. Acting like an NT doesn’t imply being an NT, it usually requires a lot of ongoing effort that could be applied to other things if society didn’t expect us to act like NTs all the time.

Conclusion

I wish people would stop telling me that I’m either disabled or too “high functioning” to be on the Autism Spectrum. I will never think like an NT and I don’t want to, so I’ll always be an Aspie. By most objective measures I’m at least as successful as the general population in all things that require social skills, so unless something like always losing at Poker is considered a disability I don’t think that it’s reasonable to consider me to be disabled.

It would be nice if I could lock the people who claim that Autism is always a disability in a room with the people who think it’s over-diagnosed and let them debate it, no matter which side lost the debate the result would be good!

Update: I removed a broken link to a Youtube video, I published this post from a 3G connection and didn’t test that the Youtube link still worked. For some reason the author had marked it private since the last time I visited it.

1

Sam Harris on Lying

The Neuroscientist and atheism advocate Sam Harris has written a short blog post about a journalist named Jonah Lehrer who destroyed his career through false quotes and lies about them [1]. The main point of the article seems to be to promote his new eBook about Lying. The book is available for free until the end of the week (not sure if that is Friday, Saturday, or Sunday and in what time zone – get it quick if you want it).

The book is very short, 58 pages with a single column of large font text. If written a densely as a typical research paper it would probably be about 12 pages. But it has some good points to make. He makes a good moral case against most forms of lying, even answering questions such as “do I look fat“.

It seems that anyone who was to follow his advice would be unusually honest even by Aspie standards.

5

Autism as an Excuse

A Polish geek going by the handle of mmemuar has recently written a blog post claiming that people use Autism as an excuse for bad behavior [1]. He gets enough things wrong in one short post to make it worth debunking it. It seems that Google’s translation of Polish isn’t as good as some other languages, but unless Google mistranslated about a dozen sections such that they had the exact opposite meaning then mmemuar’s post has a lot of wrong ideas.

Does Anyone use Autism as an Excuse?

I’ve read a lot of blog posts written by people on the Autism Spectrum, read many forum discussions, and talked to more than a few people in person. So far I haven’t yet encountered any evidence of people using an Autism Spectrum Disorder (ASD) diagnosis as an excuse. There are probably about 70,000,000 people who meet the diagnostic criteria (most of whom have not been diagnosed due to not having access to anyone who is qualified to do an assessment). The number of people who have been diagnosed is large enough that I couldn’t claim that none of them have ever used it as an excuse. The number of self-diagnosed people is also large enough that there has to be some people who wouldn’t get diagnosed if professionally assessed. But I don’t see any evidence that using an ASD as an excuse is at all common.

I imagine that some people would take someone merely mentioning the fact that they have an ASD diagnosis in a public place (EG a mailing list or a blog post) as some sort of an excuse. One problem with such an interpretation is that for every way in which people on the Autism Spectrum annoy other people it’s the ones who aren’t diagnosed (or who reject a diagnosis) that will do it the most. Being diagnosed with an ASD is correlated with annoying other people less. Another problem is that keeping quiet about such things when they get raised for discussion so often takes a psychological toll.

When someone is diagnosed as an adult a fairly common reaction is to study Psychology and Sociology (usually through web sites such as Sociological Images – which I highly recommend [2]) and try to get a better understanding of other people. Any time you assume that everyone else thinks like you then you will get things wrong, when someone gets an ASD diagnosis they will probably take more care to avoid making such mistakes.

Is Autism Obvious?

Mmemuar says “if you were full of autistic, which is very easy to overheat the brain from excess signals at the input, it would be very obvious to all“. There are some people who are utterly incapable of acting like an NT. But the majority of people on the Autism Spectrum have some ability to pass as NT, it just takes a lot of effort. So if someone is spending all their effort to walk, talk, and make eye contact in a way that most people expect then they will have little spare effort for other things. This can result in them having little patience for other people. The solution to this is to not require people to look average.

Even apart from Autism there are people who fidget, don’t make eye contact in the way you expect, and do other things a little differently. Being tolerant of such things won’t hurt you and will generally make things easier for everyone.

TheAnMish gave a good Youtube presentation about the way that she has to act “normal” [3]. Note that while her video represents her own personal experiences (which differ slightly from those of other Aspies – particularly male Aspies) they are regarded as representative enough for her video to be shown by Tony Attwood (a world renowned expert on Asperger Syndrome) at a conference about women on the Autism Spectrum. As an aside I disagree with her use of the word “normal” without scare-quotes.

Learning about Psychology through Sci-Fi

In the end of the blog post and in some of the comments there is discussion about learning to understand people through reading sci-fi books. The first problem with this is that fiction books generally have a range of characters that is determined by the author’s understanding of people, if you read multiple books by an author then you will usually notice the same character types. The second problem is that characters in fiction books are simplified to fit into a reasonable sized book, in real life people have lots of really boring reasons for doing what they do, in fiction only stuff that is interesting ends up in print.

But the biggest problem is that fiction books just aren’t a good way of learning about people. Whatever lessons might be in a fiction book will probably be missed by a reader who is concentrating on the plot. You can learn things about people by reading an analysis of literature by a Psychologist or a Sociologist, but apart from that you probably won’t be able to learn things if you don’t already know them.

As an aside, my experience of reading sci-fi books suggests that some of the popular sci-fi authors have such a poor understanding of people that it impairs their ability to write believable fiction about human characters. If I was going to try and learn about people by reading fiction I’d choose something that’s been popular for a long time. If a book has been popular for more than 100 years and sold well in different times, cultures, and languages then it probably has something to say about the human condition.

Catching up on Youth

Mmemuar says “absolutely nothing prevents you to the age of twenty he began to catch up on some ‘of youth’“. Actually one significant thing is that the human brain develops in particular stages, the older you get the more difficult it becomes to learn things. So even if it was just a matter of learning things someone who was behind at age 20 would have some significant difficulty in catching up. But some things just can’t be learned, for example someone who has extreme discomfort in making eye contact can’t just learn to be happy with it.

Also there are some things which people would have learned if it was possible. For example people who have Prosopagnosia (an inability to recognise faces) suffer extreme bullying in school, if they could just learn to recognise people then they surely would do so, so if they complete school without learning then it’s probably going to be impossible for them. Prosopagnosia is one of many conditions which can contribute to social difficulties and therefore contribute to an ASD diagnosis.

Can Aspies get Married?

Some people think that people on the Autism Spectrum can’t get married. In fact this belief is so widely held that some people who seem very obviously Autistic are convinced that they are NT simply because they are married! The fact that there are more than few books offering advice to people who have married someone who is on the Autism Spectrum is clear proof that such claims are bogus.

The Relevance to Geek Communities

People who meet the diagnostic criteria for Asperger Syndrome will almost certainly be Geeks due to the “Restricted, repetitive patterns of behavior, interests, or activities” section of the diagnostic criteria (the proposed revision for the DSM-V is the best reference I know for this [4]) as the modern use of the term Geek applies to anyone who has an extreme interest in something. The more Geeky a community is the greater the incidence of people who could be diagnosed with an ASD.

Spreading ideas such as those of mmemuar will lead to people not being assessed for an ASD. I would have been assessed earlier if it wasn’t for hearing an influential member of the Linux community say some things which were similar in concept (although not as deliberate). Having people not be assessed is bad for the individuals in question and bad for the community.

3

Autism and a Child Beauty Contest

Fenella Wagener wrote an article for the Herald Sun about an Autistic girl who won the “best personality” award from the controversial new Australian children’s beauty pageant [1]. The girl’s mother is complaining that an Autistic girl shouldn’t win a prize for personality and is critizing the pageant organisers.

A beauty contest involves queuing, being quiet, appearing on stage, wearing cosmetics and unusual/uncomfortable clothes. It probably also involves having someone else assist with dressing and applying cosmetics (being touched by another person). These are all things which tend to be difficult or impossible for Autistic kids. So any girl who can get on stage wearing make-up can probably do whatever is required to avoid being obviously excluded from a personality prize. As any such prize has to be largely subjective I don’t think it would ever be possible to prove that someone was the correct choice for the winner, it would merely be possible to prove that some candidates excluded themselves.

But whether the girl deserved to win isn’t the real issue here. I think that beauty pageants should be restricted to adults, merely entering a child in such a contest is bad enough, but making nasty public statements about a child is horrible. If other children made a Facebook page claiming that the girl in question didn’t deserve to win a “best personality” prize it would probably be reported as cyber-bullying. I don’t think that publishing the name or photo of the girl in question is in the “public interest” either. Many news sites that have picked up the story have shown the same lack of journalistic ethics so now the girl has some high traffic sites with her name linked to this story, it seems unlikely that anything good she might do in the near future will get a higher ranking for her name in search engines. So any time she searches for her name on Google (which most people do regularly) she will be reminded that her mother thinks she has some sort of defective personality because she is Autistic.

High school is generally bad for almost everyone on the Autism Spectrum. Presumably any parent who would abuse their child by allowing such an article to be published would also send them to a regular school (as opposed to Home Schooling which is probably the only good option for Autistic kids in Australia). I’m sure that the standard practice at every high school nowadays is that the kids all use Google to discover things to tease each other about. So in a few years the Herald Sun article will probably be the basis of a high school bullying campaign.

The girl in question is only 9, so she’s got another 6 or 7 years before she can legally leave her mother. In Australia 16 is the minimum legal age to live without parents and the police won’t forcibly return “runaway” children who are almost 16.

The Journalistic Code of Ethics

Here is a link to the Australian Media Alliance code of Journalistic Ethics [2]. Section 8 includes “Never exploit a person’s vulnerability or ignorance of media practice“. I think that publishing the name and photograph of a 9yo girl in a way that is likely to lead to bullying in a few years is a clear example of exploiting a vulnerable person.

The code of ethics has a guidance clause which says “Only substantial advancement of the public interest or risk of substantial harm to people allows any standard to be overridden“. Even if it was a proven fact that a beauty pageant was issuing awards to unqualified children there would not be any substantial advancement of the public interest in publishing that.

Beauty Contests are Evil

The Australian has an article about the same beauty contest by Caroline Overington which quotes adolescent and child psychotherapist Collett Smart calling for government intervention [3].

Catherine Manning has written a good article explaining some of the reasons for opposing child beauty pageants [4].

The American Psychological Association has published a report on the Sexualization of Girls [5], they have lots of references to psychological research which gives a variety of reasons for opposing child beauty contests. IMHO each of the reasons alone should be sufficient to convince people that child beauty pageants are bad.

Finally the pictures of contestants who are less than 10yo but made up to look like they are 20+ are rather disturbing.

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Receiving Death Threats

On occasion I receive death threats in comments on my blog. This doesn’t bother me, I had more than a few pathetic losers say similar things to me in high school but the difference is that a pathetic loser on the other side of the world can’t do much about it.

The latest one is on my post “Is Asperger Syndrome a Good Thing?” [1]. At 11:04AM my time (00:04 UTC) on the 23rd of November someone using IP address 82.14.50.190 (registered to “NTL Infrastructure for Tesco – Guildford”) and with the claimed email address of sharkbait @ tesco.net told me that I’m on his “to kill list“.

He was angry because my post apparently didn’t satisfy his need to “prove to people that they don’t want AS“. As it’s not possible to choose your DNA there is really no point in trying to prove that one set of genes is better than another, unless of course you want to harass people who have different genes to you.

Naturally he didn’t read my post, in fact the differences between his comment and what I wrote made me suspect that it’s something he was pasting in to lots of blogs, but it seems unlikely that he would use an iPhone for such a copy/paste job so he must just not read. For example he rhetorically asks “did you even mention it was a form of autism in your ‘negative points’” when I gave a link to the proposed DSM changes where Asperger Syndrome is being merged with “Autistic Disorder” and the word “Autism” appears 5 times in the post.

He has one specific complaint about people he knows who are on the Autism Spectrum, he says “Every time someone speaks to them they get angry and tell said person to back the fuck off. I’ve been on the receiving end.” Generally there are two possible reasons for being told to “fuck off”, one is that the person telling you is an asshole and the other is that you are being an asshole. If you are the type of person who sends death threats to bloggers then you really should consider the latter explanation.

He also suggests that I watch Boston Legal – presumably because that show has one character who is an Aspie. Now I have actually watched that show and it’s the worst legal show I’ve ever seen, when a legal show has such unrealistic portrayal of court scenes I don’t think it should be relied on for information on any other topic. I watched a couple of episodes of Boston Legal and only saw one scene with the Aspie guy, so I can’t even determine whether it’s a realistic portrayal – he’s a minor character. In any case there are plenty of Aspie guys in the Free Software community who I interact with regularly, I read forums such as AspiesForFreedom.com, and I’ve read some text books on the topic. So even if a TV show had a very accurate portrayal of an Aspie character I still doubt that I would learn anything by watching it.

As a general tip for flamers, if you want to accuse someone of being a member of a NAZI or KKK type organisation then the word you are after is Aryan not “ayrien“. If you don’t know a word then don’t use it.

Please note the conditions of sending me email [2], I reserve the right to publish all threats in any way that I wish.

A Final Note

Thanks sharkbait for adding me to your “to kill list“, I’m sure that there are lots of nice people on it and I’ve got good company.

If I didn’t get the occasional death threat I would worry that I’m not writing well enough or failing to address important issues. I will write more about Autism in the future.